Access to information: an investigation of information acquisition by parents of children with disabilities 0-6 years, in New South Wales

They included complexity of the service sector, the absence of coordinated sectoral information management, unmet need, and parental skills and family circumstances. Areas for improvement identified included the development and implementation of standard working definitions for information-related terminology and standardised information management, the creation of an information one-stop-shop, the development of sector navigational aids and the need for all parents to have access to a proactive professional. Further improvements would be made in harnessing the potential of reference groups and professionals value-adding to information exchanges with parents