Exploring the information practices of people with end-stage kidney disease

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Abstract

This small exploratory study sought to understand how people with End-Stage Kidney Disease (ESKD) experience the informationenvironment and what information practices they employ in order to inform the decisions they make in relation to treatmentand care. Using a constructivist methodology, in-depth interviews were conducted with five people who were receivinghaemodialysis in two small satellite dialysis units located in regional and rural communities in New South Wales, Australia.Thematic analysis revealed two types of patients. The first type appears to adopt a received view of information, who do notquestion their condition; and passively accept information. In the other type, patients were found to be engaged; they activelyidentified their information needs and quickly learned what that they needed to ask and who to ask. Knowing the informationpractices of people with ESKD is useful for nephrology nurses when providing patient education.
Original languageEnglish
Pages (from-to)124-130
Number of pages7
JournalJournal of Renal Care
Volume38
Issue number3
DOIs
Publication statusPublished - Sep 2012

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