Family caregivers’ experiences of caring for a relative with younger onset Dementia: A qualitative systematic review

Christy Joy Cabote, Marguerite Bramble, Damhnat McCann

Research output: Contribution to journalArticlepeer-review

22 Citations (Scopus)

Abstract

Family caregiving for people with younger onset dementia affects everyone in the family unit. This article presents findings of a qualitative systematic review exploring the experiences of family caregivers of persons with younger onset dementia. A systematic search resulted in the inclusion of five relevant articles, and two groups within the family unit were identified—child caregivers and adult and spousal caregivers. Using the thematic synthesis approach, five themes emerged: dementia damage, grief for loss of relationship, changes in family roles, positive and negative impacts of family caregiving, and transition to formal care. The review findings support increasing evidence that despite the stress of caring for a person with dementia damage, family members have the capacity to cope, adapt, and grow through their experiences. Nurses can assist families to identify their unique strengths and enhance family resiliency so they can navigate the “lonely road” of younger onset dementia.

Original languageEnglish
Pages (from-to)443-468
Number of pages26
JournalJournal of Family Nursing
Volume21
Issue number3
Early online date27 Feb 2015
DOIs
Publication statusPublished - 01 Aug 2015

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