Family-centred care in cystic fibrosis: A pilot study in North Queensland, Australia

Wendy Smyth, Gail Abernethy, Melanie Jessup, Tonia Douglas, Linda Shields

Research output: Contribution to journalArticle

3 Citations (Scopus)
3 Downloads (Pure)

Abstract

Aims: The aims were to: (i) examine perceptions of family‐centred care of parents of children with cystic fibrosis and healthcare professionals who care for them; (ii) test design and tools in a regional population.
Design: Quantitative pilot study of existing questionnaire.
Methods: The methods involved were comparative, cross‐sectional survey of parents of children with cystic fibrosis and health staff in North Queensland, using “Perceptions of Family Centered Care – Parent” and “Perceptions of Family Centered Care – Staff” questionnaires; and descriptive study of tools.
Results: Eighteen staff, 14 parents (78%, 61%); using Mann–Whitney U, showed no significant differences in scores in categories: ‘support’ ‘respect’, ‘collaboration’. Comments about suitability of questionnaires varied, but were largely positive.
Original languageEnglish
Pages (from-to)168-173
Number of pages6
JournalNursing Open
Volume4
Issue number3
DOIs
Publication statusPublished - May 2017

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