TY - JOUR
T1 - Fathers' ongoing journey when a child in the family has a chronic condition
T2 - A meta-synthesis
AU - Danford, Cynthia A
AU - Roberts, Karyn J
AU - Foster, Mandie J
AU - Giambra, Barbara
AU - Spurr, Shelley
AU - Polita, Naiara Barros
AU - Sheppard-LeMoine, Debbie
AU - Alvarenga, Willyane de Andrade
AU - Beierwaltes, Patricia
AU - de Montigny, Francine
AU - Lerret, Stacee M
AU - Nascimento, Lucila Castanheira
AU - Polfuss, Michele
AU - Renée, Caroline
AU - Sullivan-Bolyai, Susan
AU - Somanadhan, Suja
AU - Smith, Lindsay
PY - 2024/12
Y1 - 2024/12
N2 - This qualitative meta-synthesis was conducted with the aim to understand fathers' experiences and involvement when their child has a chronic condition within family context. Family nurse researchers from five countries identified 19 studies through a systematic search. Inclusion criteria were: (a) fathers as primary informant; (b) children (<19 years) with a chronic condition; (c) written in English, Spanish, French, or Portuguese. Data were synthesized using thematic analysis. Four themes reflected fathers' journey: "Juggling multiple roles" included protector, provider, and supporter; "Managing control" included relinquishing and regaining control; "Creating a new normal" addressed recovery; "Maintaining wellbeing" reflected multiple emotional responses and support found through partners, family, spirituality, and health care communities. Fathers desire to be involved in caring for their child with a chronic condition, yet involvement and experience are continually evolving due to various family needs. Health care providers should consider unconscious assumptions regarding fathers' role in child care and encourage fathers' involvement to facilitate family wellbeing.
AB - This qualitative meta-synthesis was conducted with the aim to understand fathers' experiences and involvement when their child has a chronic condition within family context. Family nurse researchers from five countries identified 19 studies through a systematic search. Inclusion criteria were: (a) fathers as primary informant; (b) children (<19 years) with a chronic condition; (c) written in English, Spanish, French, or Portuguese. Data were synthesized using thematic analysis. Four themes reflected fathers' journey: "Juggling multiple roles" included protector, provider, and supporter; "Managing control" included relinquishing and regaining control; "Creating a new normal" addressed recovery; "Maintaining wellbeing" reflected multiple emotional responses and support found through partners, family, spirituality, and health care communities. Fathers desire to be involved in caring for their child with a chronic condition, yet involvement and experience are continually evolving due to various family needs. Health care providers should consider unconscious assumptions regarding fathers' role in child care and encourage fathers' involvement to facilitate family wellbeing.
KW - Fathers
KW - Children
KW - Family
KW - Nursing
KW - Healthcare
KW - chronic condition
KW - fathers’ experience
KW - Engagement
UR - http://www.scopus.com/inward/record.url?scp=85210073712&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85210073712&partnerID=8YFLogxK
U2 - 10.1177/10748407241290308
DO - 10.1177/10748407241290308
M3 - Article
C2 - 39584461
SN - 1074-8407
VL - 30
SP - 283
EP - 303
JO - Journal of Family Nursing
JF - Journal of Family Nursing
IS - 4
ER -