Guidelines for the transition from child to adult cystic fibrosis care

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12 Citations (Scopus)


Aim: To develop relevant and feasible guidelines for transition care, based on the perspectives of stakeholders. Methods: A sequential exploratory mixed method design: the first, qualitative phase used focus group interviews with healthcare professionals. The second, quantitative phase used a questionnaire, based on the results of the interviews, to survey a larger sample of adolescent clients and healthcare professionals. Findings: The group interviews recommended a systematic approach to transition care, in an environment appropriate to each individual's stage of development, and training of healthcare professionals in issues related to adolescence and the transition process. Survey participants agreed on the relevance and feasibility of 36 of the guidelines extracted from the interviews. Conclusion The proposed guidelines reflect the elements of care essential to a secure transition from child to adult health services. They go some way to meeting the diverse needs of young people living with a chronic life-limiting illness.
Original languageEnglish
Pages (from-to)29-34
Number of pages6
JournalNursing Children and Young People
Issue number5
Publication statusPublished - 2013

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