TY - JOUR
T1 - They never see how hard it is to be me
T2 - Siblings' observations of strangers, peers and family
AU - Barr, Jacqueline
AU - McLeod, Sharynne
N1 - Imported on 12 Apr 2017 - DigiTool details were: month (773h) = April 2010; Journal title (773t) = International Journal of Speech-Language Pathology. ISSNs: 1441-7049;
PY - 2010/4
Y1 - 2010/4
N2 - Siblings of children with disabilities are an important consideration for professionals working in family-centred contexts. Siblings of children with a disability often have unique experiences and insights that can assist understanding within family-centred interactions. In order to understand siblings' complex interactions with others in their lives, 676 contributions to a children's Internet sibling support site were analysed. Three themes arose from the inductive thematic analysis regarding siblings' interactions with strangers, peers, and their family. Identified subthemes (written from the perspective of the siblings) were as follows: Strangers stare and have negative attitudes towards my sibling with a disability; peers don't understand what it's like to be me, use certain words that upset me, say nasty things and tease me about my brother/sister; although my family loves me, they don't have a lot of time for me, our plans are often disrupted, and they give me a lot of responsibility. Within family-centred intervention it is recommended that health and education professionals, and parents assist siblings to build effective strategies for interacting with others others and learn from siblings' insights.
AB - Siblings of children with disabilities are an important consideration for professionals working in family-centred contexts. Siblings of children with a disability often have unique experiences and insights that can assist understanding within family-centred interactions. In order to understand siblings' complex interactions with others in their lives, 676 contributions to a children's Internet sibling support site were analysed. Three themes arose from the inductive thematic analysis regarding siblings' interactions with strangers, peers, and their family. Identified subthemes (written from the perspective of the siblings) were as follows: Strangers stare and have negative attitudes towards my sibling with a disability; peers don't understand what it's like to be me, use certain words that upset me, say nasty things and tease me about my brother/sister; although my family loves me, they don't have a lot of time for me, our plans are often disrupted, and they give me a lot of responsibility. Within family-centred intervention it is recommended that health and education professionals, and parents assist siblings to build effective strategies for interacting with others others and learn from siblings' insights.
KW - Context
KW - Disability
KW - Family-centred practice
KW - Sibling
U2 - 10.3109/17549500903434133
DO - 10.3109/17549500903434133
M3 - Article
SN - 1754-9507
VL - 12
SP - 162
EP - 171
JO - International Journal of Speech-Language Pathology
JF - International Journal of Speech-Language Pathology
IS - 2
ER -