Toward developing consensus on family-centred care: An international descriptive study and discussion

Mohammad Al-Motlaq, BERNIE CARTER, Sarah Neill, Inger Kristensson-Hallstrom , Mandie Foster, Imelda Coyne, Diana Arabiat, Philip Darbyshire, Veronica Feeg, Linda Shields

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Abstract

Nurses around the world have described family-centred care (FCC) in various ways. With limited evidence regarding its implementation and with dissent among professionals regarding outcomes that are amorphously defined across age groups, systems and global settings, a group of children’s nursing experts from around the world collaborated to seek clarification of the terms, deconstruct the elements in the model and describe empirically a consensus of values toward operationally defining FCC. A modified Delphi method was used drawing on expert opinions of participants from eight countries to develop a contemporary and internationally agreed list of 27 statements (descriptors of FCC) that could form the foundation for a measure for future empirical psychometric study of FCC across settings and countries. Results indicated that even among FCC experts, understandings of FCC differ and that this may account for some of the confusion and conceptual disagreement. Recommendations were identified to underpin the development of a clearer vision of FCC.
Original languageEnglish
Pages (from-to)458-467
Number of pages10
JournalJournal of Child Health Care
Volume23
Issue number3
Early online date27 Aug 2018
DOIs
Publication statusPublished - 2019

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    Al-Motlaq, M., CARTER, BERNIE., Neill, S., Kristensson-Hallstrom , I., Foster, M., Coyne, I., Arabiat, D., Darbyshire, P., Feeg, V., & Shields, L. (2019). Toward developing consensus on family-centred care: An international descriptive study and discussion. Journal of Child Health Care, 23(3), 458-467. https://doi.org/10.1177/1367493518795341