Aim: To provide evidence-based guidance on methods and approaches used to enable children, adolescents, and families to be involved in participatory research in the development of a healthcare intervention or resource.

Design: Systematic review with a critical narrative approach used to synthesise findings.

Method: Key databases were searched for peer reviewed studies, using key words and subject headings. Assessments of methodological quality and sufficiency of reporting of the participatory approach were conducted.

Results: 26 studies were eligible for inclusion, including one Australian study. Most studies (88%, n=23) involved children or adolescents- predominantly healthy and neurotypical- as co-researchers and were of low to moderate quality. Six stages in which co-researchers participated in the development of an intervention or resource were identified: refining (n=21, 81%), ideating (n=20, 77%), creating (n=18, 69%), implementing (n=3, 12%), sharing (n=3, 12%) and evaluating (n=1, 4%). Seven different methods were identified as forming part of the participatory approach: focus groups (n=15, 58%), interviews (n=10, 38%), photovoice (n=9, 35%), design workshops (n=8, 31%), surveys (n=6, 23%), community consultations (n=3, 11%) and videovoice (n=1, 4%).

Conclusion: This review provides practical insights into how researchers are using a participatory approach with children and adolescents, and their families.

Key Practice Points:
•The stages and methods of engagement can be used to plan and assess the level of participation of co-researchers throughout the development of a health resource or intervention.
•Engagement with children or adolescents in the development of health interventions or resources has focused upon predominantly healthy and neurotypical children.
Original languageEnglish
Publication statusPublished - 2023
EventIGNITE Physiotherapy Conference 2023: Australian Physiotherapy Association - Brisbane Convention and Exhibition Centre, Brisbane, Australia
Duration: 04 Oct 202307 Oct 2023
https://ignite2023.physio/ (Conference website)
https://ignite2023.physio/wp-content/uploads/2023/09/Ignite2023_Abstract_book_V5.pdf (Abstract book)


ConferenceIGNITE Physiotherapy Conference 2023
Internet address


Dive into the research topics of 'Using participatory approaches in healthcare research- enabling the child's voice to be heard'. Together they form a unique fingerprint.

Cite this