Walking with a person into dementia: Creating care together

Research output: Book chapter/Published conference paperChapter (peer-reviewed)

Abstract

Dementia is still a feared condition and perhaps fear is one of the greatest barriers ro quality life for those who have dementia. Too offen people with dcmcmia are shut off from others in the community and may even be isolated within and from their own families. It was this factor that really struck me when I began worldng with Christine Bryden soon after her initial diagnosis. Christine and I firsc met more than a decade ago. We were both members of a Christian group on a Cursillo team in 1995, preparing for a forthcoming Cursillo. It was during those weeks of preparation that her diagnosis of early onset Alzheimer's disease was confirmed, following extensive investigations and involving a second medical opinion. This was the beginning of a devastating lime for Christine and a shock for the rest of us who were her friends and working on the Cursillo team with her. It was hard to believe that someone so capable and high achieving in all that she did, was suddenly getting lost on the way home from work.At our final session of Cursillo, Christine invited me to walk the journey into dementia with her as her spiritual director (spiritual guide). Her invitation came, she said, because I was both a geriatric nurse and a priest; she felt she needed both. This journey was to become a major learning experience for me.
Original languageEnglish
Title of host publicationSpirituality and personhood in dementia
EditorsAlbert Jewell
Place of PublicationLondon, England
PublisherJessica Kingsley Publishers
Chapter4
Pages42-51
Number of pages10
ISBN (Electronic)9780857003522
ISBN (Print)9781849051545
Publication statusPublished - 2011

Fingerprint Dive into the research topics of 'Walking with a person into dementia: Creating care together'. Together they form a unique fingerprint.

  • Cite this

    MacKinlay, E. (2011). Walking with a person into dementia: Creating care together. In A. Jewell (Ed.), Spirituality and personhood in dementia (pp. 42-51). Jessica Kingsley Publishers.