Abstract: Aim: The study aims to address the question 'What are the views of mothers and professionals regarding the health of families who have children with disabilities. Methods: Key informant semi-structured interviews were held with 13 mothers who had children with disabilities of varying ages and 5 disability professionals. These interviewers were taped, the data transcribed, and key themes identified through thematic analysis. Results: The mothers focused primarily on physical aspects of health, moving onto the build up of emotional health. The professionals identified mental health issues, risks factors, and physical health issues. Conclusions: Mothers' caring for children with disabilities experience physical and emotional health issues which may become chronic and complex as the child grows. Developing interventions and strategies to increase the knowledge of nurses increases the capacity to both improve the health care needs of the families and the outcomes for their children. This study has resulted in a health mentoring project that involves undergraduate nursing students working in partnership with families with the aim of improving their health.
|Number of pages||1|
|Publication status||Published - 2012|
|Event||International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSID) World Congress - Halifax, Nova Scotia|
Duration: 09 Jul 2012 → 14 Jul 2012
|Conference||International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSID) World Congress|
|Period||09/07/12 → 14/07/12|
Goddard, L. (2012). We are always there..... we never let the show down! Health issues facing mothers of children with intellectual disabilities.. 739-739. Abstract from International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSID) World Congress, .