Working bi-culturally within a palliative care research context: The development of the Te Ārai Palliative care and end of life research group

Merryn Gott, Tess Moeke-Maxwell, Tessa Morgan, Stella Black, Lisa Williams, Michal Boyd, Rosemary Frey, Jackie Robinson, Julia Slark, Gabriella Trussardi, Susan Waterworth, Rawiri Wharemate, Whio Hansen, Eliza Smith, Kiripai Kaka, Kohi Henare, Eileen Henare, Manaaki Poto, Eliza Tipene-Carter, Devi-ann Hall

Research output: Contribution to journalArticle

8 Citations (Scopus)

Abstract

It is increasingly recognised that palliative care research needs to pay more attention to culture if the diverse needs of service users are to be appropriately met. However, in most countries research, practice and policy in palliative care remains predicated upon a specific cultural understanding of the ‘good death’, firmly rooted in a Western world view. In this paper we present the formation of a new multi-disciplinary palliative care research group, explicitly set up along bi-cultural lines – The Te Ārai Palliative Care and End of Life Research Group to face challenges of traditional paradigms of palliative care in the specific context of Aotearoa New Zealand (NZ). We outline the rationale for establishing a research group which meets both Māori (indigenous people of NZ) and conventional Western standards for conducting academic research, describe our bi-cultural framework, and provide examples of how it shaped the design of three recently completed projects. We also situate our experience within the wider international literature, identifying transferable lessons for researchers wanting to do palliative care research with indigenous and minority ethnic and cultural groups.
Original languageEnglish
Pages (from-to)291-307
Number of pages16
JournalMortality
Volume22
Issue number4
Early online dateAug 2016
DOIs
Publication statusPublished - 2017

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    Gott, M., Moeke-Maxwell, T., Morgan, T., Black, S., Williams, L., Boyd, M., Frey, R., Robinson, J., Slark, J., Trussardi, G., Waterworth, S., Wharemate, R., Hansen, W., Smith, E., Kaka, K., Henare, K., Henare, E., Poto, M., Tipene-Carter, E., & Hall, D. (2017). Working bi-culturally within a palliative care research context: The development of the Te Ārai Palliative care and end of life research group. Mortality, 22(4), 291-307. https://doi.org/10.1080/13576275.2016.1216955